A Post for Whippet Lovers

archie ct2Time flies when you are enjoying yourself.

Archie (Windwalker Follow Me Home – see earlier post) recently celebrated his second birthday in a way that only a whippet can: by meeting several other dogs, whizzing around in madcap circles, taking his “owners” for a long walk, then entertaining them by fooling about for an hour with his infuriating squeaky ball and finally collapsing comatose buried under a blanket on the one sofa he is allowed to relax on. Oh yes, and ensuring he received his daily biscuit from the postman – he can hear the sound of letters dropping on the mat from five hundred metres. It’s the highlight of his morning.

Photo0188             Photo0046             Photo0186

If only we humans were so easily satisfied.

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1st August

1st August – Aboyne Highland Games. Cabers tossed, bagpipes played. Dry all dayPhoto0184(almost). 1980 paces around Aboyne Green. Archie unimpressed by the skirl of the pipes

Archie (2)

Photo0185

 

 

 

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Musical chairs, foxes and stroke statistics

ES pictureIn my tiresome way, I am writing again about the annual Scottish Stroke Care Audit. You can read what I have said in the past by clicking here.

While some of our politicians are playing musical chairs and saving the foxes – or is it playing musical foxes and saving the chairs? – at Westminster, this year’s report describes in a series of statistics the current state of play for stroke care in the real world, for real stroke patients in Scotland.

You can go to the relevant website and see full and abbreviated versions of the report by clicking here.

Statistics of this kind are, of course, a sere, impassive front for the real, gut-wrenching human stories behind them. Nor do they convey the passion and dedication of the clinicians who treat stroke patients on a daily basis. To describe all of that would require several volumes and a few boxes of tissues for the reader.

Anyway, as you are probably short of time, here are some facts and statistics from this year’s report, which covers the year 2014. I won’t dwell on the two spelling mistakes on page 2 (Section 1) of the full report:

  • Health and social care is wholly devolved to the Scottish Government
  • There are 14 territorial NHS Boards in Scotland
  • Stroke continues to be a clinical priority for NHS Scotland
  • Instead of individual standards being applied to each process used in treating patients, a “Bundle” measure is now to be used in these reports
  • The Stroke Care Bundle consists of timely stroke unit admission; swallow screen; brain scan; aspirin (where appropriate).
  • the Bundle statistics from this year’s report will be used as a baseline measure for future performance
  • Proportion of individuals receiving the Bundle within target time in Scotland as a whole – 58%
  • Number of NHS Boards exceeding 80% for the Bundle – 1 (Borders)
  • Worst performing Board for the Bundle – less than 50% (Glasgow)

There’s more, but you’ve probably had enough for now. For me there are three things that scream out from this report –

  1. Is this the best we can do for the 1 in 6 people who will have a stroke in the 21st century in a rich country?
  2. The inequality of provision across the country
  3. The absence of any measures of the quality of post-acute stroke care in the community – a real day to day concern for those who survive a stroke

There is a great deal of excellent work being done for stroke patients across the country by clinicians, allied health professionals and charities, but a great deal remains to be done. As the report admits:

There remain areas of significant challenge:

The number of appropriate Scottish stroke patients receiving thrombolysis within 1 hour of arrival at hospital has improved from 29% to 34%, but this is still a considerable distance from the Scottish Stroke Care Standard of 80%.

For Carotid Endarterectomy, only 42% of stroke patients had their operation within the 14 day Scottish Stroke Care Standard which again is still a considerable distance from the standard of 80%.

Innovative service redesign is required in both these areas to improve patient care.

Indeed. Politicians please note – better resources here, some service redesign there, some good shared learning across the Boards everywhere.

Let the chairs and foxes fend for themselves.

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A message from California

ES pictureBlogging offers a mixture of guilt and delight.

Guilt, because you feel the self-imposed duty to write on the blog regularly, and life being what it is many days can go by without any entries made. “A great relief!” I hear some of you cry. But from feedback received – and this is the “delight” bit – I know that others find some entries to be of interest – sources of disagreement, entertainment even – and it is always a pleasure to hear from people with an interest in the topics featured on this blog.

Both a risk and pleasure of the internet is that whatever you write can be read anywhere in the world – this blog has readers and followers in the UK, Ireland, Europe, North America and Africa. Some of these readers are fellow stroke survivors and it was wonderful to have an email recently from a book publicist in California who was writing on behalf of one of them to promote her book Before, Afdre and After  . Strange title? Read on….

Maureen Twomey was 33 in 2000 when she had a massive stroke. A young, energetic copywriter for an advertising agency with a great sense of humour, she had a promising career in front of her and was living life in San Francisco to the full. She particularly enjoyed improvised drama. The stroke she suffered in June 2000 left her unable to read, write or speak, along with many of the other delightful consequences of a major stroke.

Do you begin to see the implication of that title now?

I don’t intend this blog to be a spoiler, but it is worth quoting one of her fellow writers, Luke Sullivan:

The nurse’s note read: ‘Standing by chair. Standing by sink.’ To most of us, these are not accomplishments. To a person recovering from a stroke, they are miracles. For one author, so was writing the sentence, ‘I sit.’ Or learning to speak again. But fortunately for us, Maureen learned to write again. She brought back this moving book.

One of the lessons I learned post-stroke, is that I was “very lucky”, as one of the nurses in Oslo repeatedly told me. Oh yes, there are huge frustrations, aching gaps and significant losses, to say nothing of the stresses on others around me. But it could have been much, much worse – a couple of days ago my pedometer (see earlier post) recorded 7980 paces after a long walk on the Deeside Way. There was a time when just one of those paces would have been completely beyond me.

Maureen’s story is a great example of the triumph of the human spirit over seemingly insuperable odds.Why not read her book for yourself? You will be moved and entertained.

The link on the image and title above will take you to her Amazon page where the book is available as a paperback or a download.

 

 

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The Wicker Basket

ES pictureFew of us will have remained unmoved by the sight of hundreds of our fellow human beings packed into unseaworthy craft and left drifting helplessly in the Mediterranean, in their struggle to escape the carnage and oppression of the Middle East and parts of West Africa. The horrors that drive these people to such desperate actions must be grim indeed. Hope and despair in equal measure aboard flimsy craft.

Though acted out in hugely different circumstances, their plight brings to my mind the story of one of my wife’s ancestors, James Smith, who was shipwrecked in mid-Atlantic in 1854.

Originally from Edinburgh, James was on his ninth crossing of the Atlantic, having established a successful business in Mississippi some years earlier. Sadly his wife became ill because of the climate, and they agreed that she should return to Edinburgh with their three youngest children.  His intention on this visit to America was to sell the business and return to Scotland to rejoin his wife.  He travelled aboard the SS Arctic, one of the largest paddle steamers to ply the Atlantic, from Liverpool to Boston.

USM_steamship_Arctic

SS Arctic

At sea, the voyage settled into a predictable rhythm – the swish of paddles stirring a benign ocean, conversation with fellow passengers, life in a shared cabin and the low throb of engines kept running by the unseen firemen and stokers below decks – muscle-bound men, whose duty was to keep the engines fed with coal so that the enormous paddles could propel them at a steady 12 knots across the Atlantic to Boston.  Captain Luce of the Arctic had his son with him and the lad was occasionally seen with his father, touring the passenger decks. Near the end of her voyage, the north-west Atlantic fog descended and James noted that the ship did not slow down or sound an intermittent warning horn.

Late one afternoon, there was a sudden shouting from crew members, followed by a dull thud. James rushed out on deck to see what was happening.  He was just in time to see a small steamer – the Vesta – disappearing into the mist.  It seemed the Arctic had collided with the other vessel.  There did not appear to be significant damage to the Arctic but in a brief lifting of the fog it was possible to see that the Vesta had sustained damage to her bow.  Shouts could be heard through the mist.

Believing his own vessel undamaged, Captain Luce ordered first officer and senior crew to take to a boat to see what assistance the Vesta required.  Other crew members lowered another boat to ascertain the extent of the damage to the Arctic.  James noticed she was listing to starboard and crew appeared to be rushing around in panic.  Other boats were lowered, and crew and some passengers started jumping into them.  The normally unseen stokers appeared on deck and used their muscle to assure themselves of places on the lifeboats.  James saw three fellow passengers lashing planks together to form a raft.  Meanwhile nothing could be seen of the Arctic’s first officer and crew who had set sail for the Vesta. Distant screams of terror suggested the worst.

The engines of the Arctic had stopped – either overwhelmed by water or because the stokers had left their posts. The ship listed more and more perilously.  Captain Luce could be seen with his son on top of the paddle box attempting to direct operations. There was general panic.

Taking his cue from fellow passengers, James lowered himself onto a piece of floating wreckage and paddled away from the ship.  Moments later the Arctic plunged stern first into the sea, leaving floating wreckage, a few struggling bodies and two lifeboats laden with people.  James remained afloat on his fragile timbers for several hours until daylight faded.  There was a deep silence, a gentle swell on the sea and occasionally in the distant murk a piece of wreckage.  As he floated there, seventy miles from land, he was aware that amongst some wreckage there was a large steward’s basket, the kind of zinc-lined, wicker basket used for carrying plates.  With considerable effort he pulled the basket on to his raft and climbed into it.

This basket was James’ home for three days. He was aching with hunger and thirst and beginning to despair of ever seeing home again when he saw a ship emerge from the gloom – this was the Cambria, en route to Quebec.  She had already picked up survivors from the Arctic, and James was one of the last.  He was hauled on board, cold and stiff, and begged the crew to save the wicker basket as a reminder of his miraculous survival.  The Cambria sailed on to Quebec, and James eventually travelled on to Mississippi. Amazingly, the Vesta did not sink but limped into Quebec shortly before the Cambria.

The sinking of the Arctic was one of the greatest marine tragedies of the 19th century – of the 383 passengers and crew, 21 passengers and 54 crew survived – no women or children survived, and there were many questions about decisions made by Captain Luce and the crew. As a result of a comprehensive investigation by the American Department of Transport many regulations relating to maritime transport were changed.

James Smith returned to Scotland to rejoin his wife and family, but he also left behind family in America – the “Smith connection” as they are known in Johanna’s family.  To this day, they have retained “Cambria” as a family name for girls in memory of the ship that rescued their forefather.

ESSE-StoveOn return to Scotland, James Smith went on to found the firm of Smith and Wellstood, at Bonnybridge near Falkirk, manufacturing cast iron range cookers.  Business flourished and they launched their now famous Esse brand of stoves and cookers.  Until recently, on the Esse website, there was a picture of him, looking the complete Victorian patriarch, and beneath it the story of his survival in the wicker basket. (Note to the manufacturers: Why not restore that image and story to your website?)

While on the Cambria, James Smith wrote a closely observed account of the sinking of the Arctic which appeared in the Quebec Chronicle on 14th October 1854.   Reading his account, the sheer understated spirit and humanity of the man reaches across the years. We are proud to have a copy on our bookshelf.

Like today’s refugees, James must have felt hope and despair in equal measure – but, perhaps only a fraction of the terror felt by those poor souls drifting in another sea, in our own times. I am certain that he would have been hugely moved by their predicament.

If any readers of this blog know any more about the events surrounding the sinking of the Arctic, or about James Smith’s survival I’d be delighted to hear from you.

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An eclipse eclipsed

A 90% eclipse of the sun on Deeside at 09.35 am  on 20 March….eclipsed by some low cloud

eclipse1     Eclipse2

Eclipse4     eclipse5

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What about the life in your head?

ericWhat’s the life in your head like?

For stroke survivors or, indeed, anyone fascinated by the workings of the human brain I recommend listening to the recent BBC Radio 4 programme The Life in My Head  – click on the link to go there. This programme is about stroke and recovery from stroke, and about the wonder that is the human brain. The programme is presented by Robert McCrum, whose book My Year Off I found inspirational once I’d regained the ability to read and concentrate back in 2004/5. If you are short of time, I recommend at least listening to the second episode which describes his experience of undergoing a couple of weeks of intensive physiotherapy twenty years after his stroke.

There really is life after stroke. The practical application of the most recent research and what it reveals about neuroplasticity – the ability of the brain to relearn skills and master new ones – is something  that must urgently find its way into standard NHS treatment of stroke survivors.

Listen for yourself!

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A date for your diary

This is Archie basking in Deeside sunshine on 8 March 2015. He is wearing a purple Stroke Association neckerchief, because on 10 May 2015 he will be taking part in a Stroke Association Step Out for Stroke event on Aboyne Green here on Deeside. Yes, I know that there is another important date in May 2015 (more of this in a later post), but please read on…

archie ct2Enthusiastic readers of this blog will remember that two years ago, our late whippet, Hamish, and I undertook a sponsored walk – Step Out for Stroke – at Glamis Castle in Angus. At the time, Hamish complained loudly about several aspects of the day: the long journey, the chilly breeze and the colour of the t-shirt he was forced to wear being just some of them. Perhaps he was feeling his age, as this proved to be his last major outing before his sad passing the following month. Thanks to the generosity of many friends, we raised almost £300 for the Stroke Association on that day. These are funds that go directly to supporting research into stroke and providing help for stroke survivors in Scotland and across the UK.

Last May, on a lovely sunny day, a similar event was held on Aboyne Green and a number of you supported this very generously. We also had great support from the Aboyne Rotary Club who provided stewards (and cakes) on the day. This year a further family day out will be held here on Deeside, because on the afternoon of 10 May 2015 another Step Out for Stroke event is being held on Aboyne Green. The funds raised will be shared equally between the Stroke Association and the Deeside Stroke Group, which holds a weekly exercise class for local stroke survivors in Aboyne and is supported and part-funded by the Stroke Association in Scotland.

Step Out for Stroke is a sponsored walk open to all ages and abilities, including wheelchair users. Well-behaved pets are welcome. Events are held all over the UK. You can choose to walk ten steps or a couple of miles. You can just turn up on the day – there’s a £5 registration fee – but even better, if you register in advance, you may be able to persuade friends and family to sponsor you to take part. You can register on-line by clicking here, or on Archie’s photo above, or if on-line is not your thing, you can register by post, by sending off a form available from the Stroke Association in Edinburgh (0131 555 7245). Because undiagnosed high blood pressure is a major cause of stroke, you can, if you wish, have your blood pressure taken by a trained volunteer at this event.

May is also Stroke Awareness month and the Stroke Association is encouraging everyone to make, bake, wear or do something purple that month. With one in six people of all ages in the UK suffering a stroke every year, this is a serious health issue which devastates lives and is a major cost to health and social care services. On Sunday 10 May, you can play a part in helping to defeat this dreadful condition, whether dressed in purple or not. I’ll be walking with my whippet, Archie, in tow. I’ll be joined by a number of people affected by stroke. Will you join us – again? If you can’t join us, but would like to donate, click here for Archie’s fund raising page. And that date again? 10 May 2015.

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New Year 2015

Happy New Year to all followers of this blog

Archie (2)

Just don’t trouble me for a while – too much human merriment going on.

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Christmas 2014

Christmas 2014 on Deeside

Xmas 2014 e

Xmas 2014 b                           Xmas 2014 f

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