New Year’s Day

A bright, chilly day for a walk, with a few others out and about filling their lungs with sharp 2013 air. Definitely a day for a jersey. Happy New Year.050

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Seasonal Traditions

Everyone has their Christmas traditions.

In our household, a Christmas tradition in recent years has been for Hamish, aging literary whippet, with a manly white chest  and so on, to acquire an indisposition of some kind. It seems to be a law of life that dogs and humans fall ill at weekends and during holidays.  For humans in Deeside it’s a question of contacting the out of hours doctor – this can be tricky sometimes, but at least there is no immediate financial penalty.  For dogs, however, the cost can be quite staggering and always involves a journey of some kind.

Hamish’s indisposition this year was a painful, outrageously swollen paw which he first drew to our attention two days before Christmas by hobbling around the kitchen in a rather limp-wristed way which was his attempt to show off the affected limb. He followed this with an upward look of deep sorrow, the kind of expression which would extract sympathy from the stoniest heart.  A phone call to the vet revealed one remaining appointment before Christmas, with just forty minutes to spare. Jo drove him to Banchory and a course of antibiotics was prescribed by a vet standing in for the usual excellent professional.

Vet: Does Hamish take pills easily?

Jo: Oh yes. That’s no problem.

Vet: That’s good to hear – it can be a problem with some dogs.

Behind this simple exchange of information, however, lies what Al Gore might call an inconvenient truth. The vet duly produced a pack of huge purposeful-looking antibiotic pills. Jo paid for these with Master’s severely weakened credit card. Pills, dog and Mistress returned home. And now for the inconvenient truth – Hamish only takes pills if they are wrapped in something palatable – and “palatable” in Hamish’s case means “gourmet”.  It’s no use trying to hide the antibiotic in a dish of dog food – the food will be eaten, the pill remain untasted. In fact, his pill-taking reminds me of one of those rather flowery dinner menus – you know the sort of thing: succulent, slow cooked pork on a bed of tender mashed potatoes, overlaid with a subtle jus of apple and pear. So twice a day over Christmas and for the next two weeks, Hamish gets to snack briefly on antibiotic wrapped in Brie or antibiotic presented in a small bed of Christmas cake. Add further examples of your own “to taste”.

Anyway, with amazing speed the paw began to return to normal – the antibiotics had worked but like all antibiotics, they worked and had side effects.  That strained, pained look Hamish had all day on Christmas Eve and on Christmas morning was suddenly explained during our post Christmas lunch walk on Christmas Day, when, with great effort and evident pleasure and to the enormous delight of our grandchildren Hamish produced what can best be described as an outsize Yuletide log just a few minutes after leaving the house.

And the swollen paw? That’s long forgotten, of course.

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Spare a thought or more

Every five minutes someone in the UK suffers a stroke.

Of those who survive, it’s all about loss. Many will be left with major problems such as significant physical disability, significant loss of one or more of the senses we take for granted, significant loss of speech or cognitive function – or some horrible combination of these. Stroke can have a devastating effect on your family and on the rest of your life. Spare a thought for those who, this Christmas, are coming terms with loss caused by stroke – loss of a loved one, loss of physical ability, loss of the sound of a much-loved voice, loss of character and personality.

In fact, why not spare more than a thought? Why not resolve to donate to one of the charities that provide support for stroke survivors, that fund research into this condition and that campaign for improvements to the treatment and rehabilitation stroke survivors can expect in our rich country? In the last few years I’ve been privileged to meet many stroke survivors and their carers who are rebuilding their lives against the odds. By supporting stroke charities, you are supporting them.

Hamish and I will be taking a break for the next few days and are fortunate in that we will be surrounded by friends and family. Hamish will spend much time near and under our kitchen table, jaws agape, expectantly awaiting the dropping of crumbs and food from the mouths and hands of small children. His Master will try to adopt a more dignified position but he will still be looking out for any Christmas fare that comes his way.

We’ll both look forward to writing on this blog again in 2013. Happy Christmas.

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Cards and messages

It is at this time of year that you know who your friends are.

By that I don’t mean numbers of Christmas cards and messages received, though that is part of it. No, I mean the quality of message received. Some messages arrive by email and have attachments with photos and other gizmos. Many cards arrive with letters and “round robin” messages included. Some cards just arrive with the name of the sender signed hurriedly across it. After a lifetime of moving from place to place within and outwith the UK, the Christmas cards we receive quickly have us reminiscing about the many different phases of our lives.

We have one friend whose card always arrives at the last moment with just his name on it.  To the untutored eye, this might suggest that his is a half-hearted friendship, a bit of an afterthought on the Christmas list.  Nothing could be further from the truth.  He may not wax lyrical about his achievements through the year, or the achievements of his family. He may not send a card gushing with good wishes to us. But we know, through years of experiencing his kindness to us and to our family, that he is always there for us and we for him.

We also received a card today from a friend who lives in London. We rarely see him or his family from one year’s end to the next. He writes: “Will you be in London in 2013? We’d love to see Jo, and if you have to bring Eric along, we’d tolerate that.” I know – and he knows – that this kind of insult would be repaid in kind many times over if we do meet face to face in London – or anywhere – at any time.  This is a friendship that can be picked up face to face after a month, a year, a decade or half a life time.

As I say, it’s at this time of year that you know who your friends are.

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Words

I am eternally grateful that the stroke I suffered on 18 July 2004 did not take away my power to speak, reason and understand – in short, to enjoy language.

Since that date I have met many stroke survivors who have serious speech problems as a result of their stroke. These can include relatively minor weakness of the facial muscles we use to construct speech, or, more seriously, aphasia which affects the ability to read, to speak and to understand the spoken word to a greater or lesser degree.

Words are so inextricably bound up with personality and character, the sum total of what it is to be human, that to lose even a fraction of the power and subtlety of language is a major tragedy.  “Words, words, words,” says Hamlet to the fawning courtier, Polonius, when he asks “What do you read, my lord?” But words are not to be treated lightly. George Orwell knew this when he described Newspeak in Nineteen Eighty-Four. To reduce the nuances of language  is to reduce the power and complexity of thought. Control the power and complexity of human thought and you reduce the ability of citizens to criticize and comment on those who govern them. But enough of that – for most of us, there is a simple enjoyment in words used well which we should treasure while we have it.

Scots have a rich oral and literary tradition, which is especially strong here on Deeside. Yesterday we attended, with friends, an event celebrating local writing in English and Doric on the theme of Christmas. Billed as a “literary Carol Concert”, the words were interspersed with music and the singing of carols. The event was sponsored by our local bookshop Yeadons and was also designed to promote the St Margaret’s Arts Project which is centred on the regeneration for community use of a former episcopal church in Braemar. About a hundred of us crowded into the intimate, rather chilly, surroundings of Crathie Kirk to enjoy this feast of the spoken word. Christmas readings included everything from poems commissioned for the event and tales of the humour and fellowship of life in rural Aberdeenshire to a retelling of the details of the famous football games and other social contacts between Scottish and German troops in the no-man’s land between the trenches of the First World War.

The event was followed by mulled wine and mince pies at Balmoral Castle, plenty of laughter and a rather treacherous journey home on icy roads. Where else, except here on Deeside, could you combine music, memorable prose, village humour, a visit to the queen’s estate and a bit of skidding on black ice on one wintry afternoon in December?

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Frozen Paws

  Master has taught me a new word – it is “empathy”.

So I am posting to let you know that I have empathy with anyone out there in the frozen wastes of north-east Scotland who has had to go out into the cold snowy weather today. This is not whippet-friendly weather.

I am also asking for your empathy in return.

This morning I was dragged out on my usual walk to the river by Mistress just before dawn. I could see in advance that the whole enterprise was going to freeze my paws to the bone, so to begin with I dug my heels in tightly and refused to budge from the kitchen. I even tried the high-pitched whimper. Mistress, of course, simply exercised her Iron Will and dragged me outside, forcing me into my horrible blue coat on the way. She has the strength of an ox and the sensitivity of a brick. We walked for miles through the blinding snowflakes and freezing temperatures – imagine being ordered to perform your personal business in that. She had no empathy with me at all.

Learning point: If you feel sorry for me that is a step on the road to empathy.

I’m going to lie down and sulk. All the best to all cold dogs out there.

Hamish Sinclair

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Cross Party Groups

When our three children were young I remember them discussing the nature of crosswords – along the lines of: Why is mum so interested in cross words? Why would they (ie Mum and Dad) be so interested in angry words? Indeed. Discuss.

I was thinking about cross (ie angry) words myself last week during a visit to the Scottish Parliament – a place where we tend to hear cross words more often than not in exchanges between all the political parties. At question time, our First Minister is often heard loudly berating the failings of the other parties (rather than answering the question asked of him), while he in turn has been scorned as being “as straight as a corkscrew” or referred to as “Pinocchio” by the leader of the main opposition party. At a time when the turnout at elections is lower than it should be, I often wonder if our tribunes ask themselves whether this sort of exchange is likely to switch on young people and others to our democratic institutions.

At any rate, I was there to attend a Cross Party Group – in this case “cross” in the sense of “across” – on heart disease and stroke.  I do not know how many national parliaments have such things as cross party groups in existence, but it is one of the better features of our Scottish parliament that such groups exist to promote discussion of particular interests and causes. The cross party groups (CPGs) have no powers, but they are there as a forum to allow our MSPs to meet with charities, other organisations and individuals who have a particular interest or expertise in specific areas of health, education and so on. Here is a link to the current Scottish Parliament CPGs,

CPGs can do no harm; they allow politicians of opposing parties to hear measured views from professionals and others with a real knowledge a specific topic; above all they make possible informed intelligent discussion of important issues of the day away from the febrile atmosphere of the main debating chamber.  Why, who knows, they may even lead to better policy making and decisions in the future.

The CPG on Heart Disease and Stroke is admirably and sensitively chaired by Helen Eadie, the Labour MSP for Cowdenbeath, and is regularly attended by MSPs from all parties. My own small role at last Wednesday’s meeting was to represent the Stroke Association and to report back jointly with a consultant physiotherapist to the CPG on work a sub-group had been doing on a charter for stroke survivors. This charter spells out in straightforward terms what we can expect in the way of rehabilitation and support from the NHS and social care services in Scotland on discharge from hospital.  The discussion at the meeting around this charter was so positive that we are hopeful it may lead to some real change.

At the very least it should lead to a better understanding of what is provided for stroke survivors and what they are entitled to expect. Watch this space for further developments.

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A Compassionate Life

A small group of us have been meeting over the last few weeks to discuss Karen Armstrong’s book Twelve Steps to a Compassionate Life. We had previously discussed her book The Case for God and subsequently Richard Dawkins’ book The God Delusion.  Can you detect a theme here? To give you a clue, we have been meeting on a weekday evening in Birse and Feughside Church hall, though we participants have a wide range of religious faiths and none, and not all are members of this church. Oh yes, it’s not all fun and riotous living here on Deeside.

These are books that do not necessarily make you feel comfortable. But then religion is not always a comfortable topic, whether or not you are religious yourself. In the last few days we have seen more violence in the Middle East. Over the last year, hundreds of rockets have been fired at Israel from Gaza by Hamas, which Israel regards as a terrorist organisation. In response, the Israeli air force and navy have launched a series of what they are calling surgical strikes on Gaza. In the midst of it all, being killed, wounded and traumatised are Palestinian and Israeli civilians. Richard Dawkins probably regards this situation as just another example of the destructive power of religion and religious belief – and it is true that there are religious fanatics on both sides, who may or may not be truly representative of the religions to which they claim to belong. Karen Armstrong, on the other hand, probably sees here a failure of individuals to live out the compassionate Golden Rule that she claims is at the heart of all religions – i.e. treat others as you would like to be treated yourself. She is very specific about war and warlike actions, and urges us to learn about and understand our enemy: Is there great suffering in your enemy’s history? Remember that in a threatening environment, the human brain becomes permanently organised for aggression: has this happened to your enemy?…..Retaliation is likely only to exacerbate the hatred and violence activated by the threat mechanism. (Twelve Steps to a Compassionate Life p171)

Ironically, Richard Dawkins and Karen Armstrong arrive at the same conclusions about ideals of human behaviour, but by very different routes. The difficulty with ideals, of course, is living them out in practice. When you read some of the statements on both sides of the Gaza/Israel conflict it is easy to despair. This from the son of the former Israeli Prime Minister, Ariel Sharon: We need to flatten entire neighborhoods in Gaza. Flatten all of Gaza. The Americans didn’t stop with Hiroshima – the Japanese weren’t surrendering fast enough, so they hit Nagasaki, too. Or this from the charter of Hamas: Our struggle against the Jews is very great and very serious and it goes on to call for the total destruction of Israel. Cheerful stuff – on both sides.

This all sounds a long way from Birse and Feughside and discussion by well-meaning people of ideals in books. But peace and reconciliation have to start somewhere, usually by individuals sitting down to talk to other individuals and deciding that their common humanity is more important than any religious, cultural, historical or nationalist baggage they are carrying.

In the Middle East at the moment that still quiet voice of common humanity seems very quiet indeed.

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Single rooms in hospitals

There is an interesting article in today’s Scottish Review about single rooms in hospitals. The writer makes the point that there is a cost difference of 15% between building a hospital with a 50/50 mix of 4-bed wards and single rooms and one with single rooms only. Single rooms cost the taxpayer more. There is an underlying assumption in this article that most patients are sad old souls who are happy to be in hospital for a bit of company.

I’m a single room man, myself.

Apparently this places me in a minority, by quite a margin. Don’t get me wrong, I’m not anti-social or a hermit. I’ve shared train sleeping cars with snorers, farters, smokers and sweaty sock owners in my time, and survived. I’ve shared hotel rooms with assorted friends and acquaintances in order to save costs. Some of these friends possessed the habits and garments listed above – they know who they are. It’s not that I mind sharing rooms: I’ve probably shared some unpleasant personal habits myself. But hospital is different.

Hospital life is a rather depressing parallel universe with a sub-culture all of its own. I’ve been fortunate to spend very little of my life in a hospital bed, but I had 4 months of it after the stroke in 2004. For much of that time I was in a six-bed ward with five other men – fine chaps most of them. Some of them had been there for many months. Some were much more seriously ill than I was. There was plenty of banter. Sometimes this was not just bearable, but actually enjoyable. Two of us, quite disgracefully, used to give each others’ names if new nurses appeared on the ward seeking to take samples of our blood. We’d call them “vampires”. We’d laugh at one another’s inability to stand up or do the exercises demanded of us by the physios. When I was learning to stand again with a support, I’d raise my right hand in a Nazi salute and pretend to be addressing the Nuremberg rally. We’d josh with the cleaner. After a long career in schools I knew all the adolescent tricks, applied them and learned a few more.

But most of the time, I just craved silence, and I’m willing to bet the other guys did, too.
Wards are noisy places. Many hospital staff are not inherently quiet. Lying awake in the early morning, listening to the morning shift nurses chatting as they came on duty, I’d learn more about their love lives than I ever wished to know. There is always a background bustle and the rattle of equipment. We could overhear all the noises emanating from the toilet at the end of the ward. Even with curtains drawn we could hear the hushed chat of professionals gathered around a seriously ill patient. Above all, morning, afternoon and evening, there was the braying and flickering of mindless television. With my concentration destroyed post-stroke, the constant background noise made it impossible to read or even concentrate on chat from a visitor.

I remember one afternoon when my wife was visiting. My fellow patients were all apparently asleep or comatose, but the television was blaring.  Jo tiptoed over to the set and turned off the sound. As if several thousand volts had been fired up his back, one of the other patients immediately rose Lazarus-like in his bed and bellowed at her “How do you think we can hear the telly with the sound down so low?”

For weeks, I lusted after one of the single rooms that were available to a lucky or very ill few. For a few days, just before I was discharged, I was afforded the luxury of one of these rooms. This allowed silence and privacy when I wanted it (90% of the time) and joshing with the other inmates at other times.

Above all, when you’re in hospital, you tend to feel damned unwell and when I’m unwell, I just want to be left alone, and to get well again as soon as possible. In peace.

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Stroke and the benefits system

The Stroke Association has a new campaign to draw attention to the circumstances faced by younger stroke survivors. It’s called Life After Stroke. Stroke has a drastic impact on younger people’s finances and relationships. Working age stroke survivors, already forced to come to terms with the effects of the stroke, may be unable to return to work, are often coping with a fall in income, increased household bills and a benefits system that fails to fully understand the impact of stroke.

Stroke is often thought of as an older person’s issue, yet about a quarter of strokes occur in people of working age. In a moment, that person can be turned from an independent, tax-paying individual to someone who is dependent on the benefits system. The Stroke Association is calling on the Department for Work and Pensions (DWP) to make sure:

  • The benefits system is fair and respects the dignity of stroke survivors and their families.
  • All assessors and DWP staff are trained to understand the impact of stroke and recognise the range of the disabilities it causes.
  • DWP learn from the mistakes that have been made with previous changes to assessment procedures and do not repeat them when the Personal Independence Payment replaces Disability Living Allowance next April.

Stroke is the leading cause of severe adult disability in Scotland and it is inexcusable that the DWP processes appear often to be carried out by undertrained assessors whose view is to restrict support rather than enable help.

Disability Living Allowance is not a gateway to riches, though it is a gateway to such other benefits as a blue badge for car parking. I know from my own experience that the benefits system is particularly labyrinthine for those who, like me, are self-employed, and whose income dries up the moment they are admitted to hospital for a long spell or are undergoing rehabilitation for a long period. It was two years between my stroke and the next occasion on which I earned income from work. In the mean time, you have to learn a new social care/benefits vocabulary; you have to learn the right questions to ask; above all you have to learn how to answer the questions you are asked by the benefits system. This is just bearable if you are reasonably articulate and/or have a supportive family; but, I imagine, completely unbearable if you don’t have these advantages. Stroke survivors tend to be over-optimistic about their physical abilities. I remember being asked if I could walk 50 metres unaided. My instinct was to say “yes”, because I could do so (very slowly and in pain), until my wife pointed out that I could sometimes walk 50 metres but there were many times when I could not, because of pain and utter exhaustion. How do you cram this kind of information into a benefits tick-box? How do you communicate the subtlety of these impacts of stroke without sounding pathetic and self-pitying? As I’ve written before on this blog, it’s impossible to have a stroke and be macho.

Iain Duncan Smith wants to reform and simplify the benefits system – a herculean task, which deserves our support – but the system that emerges must not be over-simplified and dehumanised to the extent that assessment of claimants fails to take account of all the aspects of the condition from which they are suffering. Above all there needs to be genuine, informed human contact between claimant and system at the points of application and review.

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